As my readers know, I am quite angry with what the health care system has handed me of late.

I won’t even go into the ludicrous bureaucracy that my health insurance company (local to MA…named after a large university here in Boston and the folks that sailed over here on the Mayflower…) has added to the mix.

Nor will I travel down the path of how insanely horrendous the service is at the mail-order pharmacy is (“at the corner of happy and healthy” – HA!) I am forced to use by said insurance company – so bad that I have to go through the main office of the company in Florida from now on to get service due to the numerous screw-up they have made…and how miserable they have made the lives of the wonderful staff at my PCP‘s office.

But, a ray of sunshine appeared in my inbox today – this posting from a great doctor-centric blog called Mind The Gap

The topic of this particular blog is about how doctors lose opportunities to connect with their patients – or, how doctor-patient communication fails. This blog doesn’t mince words – it calls things as they are – point out the flaws in the system – and doesn’t blame patients with their lists of questions as so many other physician-oriented blogs are apt to do.

It also reminded me of the other great posts that Mid the Gap also posts regularly. Any ePatient, advocate or activist might want to consider following this blog. The authors are well-credentialed, and echo sentiments I often express.

[Since I don’t have those two elusive initials after my name, most seem to turn a deaf ear to the 16 years of my knowledge and experience I have been blogging about for years – and about how I have been somewhat successful in getting appropriate treatment for some not-so-common-illnesses, and perhaps most important, feel believed (I am a female, after all).]

My response to the Mid the Gap posting today:

“Doctors are “missing the boat” b/c they don’t communicate with each other about their patients that they refer to each other. They refuse to share reports. The patients are left in limbo – with no info, and no way to get the info without PAYING for the report. Why can’t docs communicate about their common patients? Perhaps then they could actually help SOLVE their patients’ issues instead of keeping their patients sick, depressed and on disability. I am a “victim” of the micro-specialty craze sweeping the medical fields. I have seen more specialists in one year than I hae seen in the prior 50 yrs of my life. And have any of them communicated with each other to say, see if ANY of my symptoms are linked or related (hmmm, based on what I know as a former biotech/science person myself, I would say that autoimmune and autonomic problems are likely linked…as could be the pituitary tumor and sudden painful breast growth and horrid depression…and my Raynaud’s…and my migraines…) But none of these micro-specialists will talk to each other. Most of them refuse to send reports to my PCP – and she is the one that REFERRED ME TO THEM!!!
Talk about missed opportunities – there ya go – that is where the missed opportunites to help patients are originating. How does that oath start again…, oh yeah, “First, do no harm…”


I wish I had the time and space to tell you how much harm these specialists have caused for me, my family and my quality of life because of their arrogance.

Thank you for pointing out that the problems with healthcare today are starting with the doctors attitudes and not with the patients – as many doctor-centric blogs do. Keep up the great work!!!!”


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