Here we go again – something that links directly to doctor-patient communication, and doctors attitudes about their hard-to-diagnose patients impacts us in ways they never imagine. Perhaps the health community should rethink their approach to patients like us…and maybe then we won’t have the issues that this blog by Michelle of “Living With Bob” discusses.
If you have a chronic, but invisible illness, you may have noticed that there lacks (for most zebras) the rally and support experienced by those with more visible, well-known conditions.
Friends and family members makes passive-aggressive comments about your constant “issues.” Or, they stop including you in their lives, period.
Michelle, wrote an excellent post about this yesterday.
Please read it here
Regular readers of my blog will know this is something I’ve had to endure for several years now.
What baffles me is how ignorant the doctors are…you present with several bizarre, subjective (not objective!!) and tangible conditions, a history of hospitalizations, surgeries….yadda yadda yadda…and STILL they question you, almost implying you are imagining all the problems you have.
The day I can will my blood tests to be abnormal (as they are) is the day I’ll be Queen.
My support comes mostly from strangers I’ve only “met” through the interwebs – others just like me, with exactly the same conditions – or others that are wonderfully empathetic. But no one IRL.
So, what has your experience been?
Have you been abandoned by friend and family?
Do doctors constant question you about “really” being unable to work?
YMMV – I’d still love to hear your about experiences.